2025 PCORI Annual Meeting Poster “Co-Design in Practice: Lessons from Engaging People with Lived Experience in Economic Impact Research Workshops”
The poster, presented at the 2025 PCORI Annual Meeting, summarizes the development of a practical checklist to help researchers consistently and meaningfully engage patients and caregivers throughout the lifecycle of rare disease value research (including CER and HTA), ensuring patient perspectives are systematically incorporated into study design, conduct, and dissemination. VIEW POSTER
Uncovering the True Cost of Healthcare: Quantifying the Cost of Stress for Patients and Caregivers
The Uncovering the True Cost of Healthcare: Quantifying the Cost of Stress for Patients and Caregivers Workshop #5 Learning Report summarizes a September 2025 convening by IVI that examined chronic stress as a major, yet largely unmeasured, driver of both health outcomes and economic costs for patients and caregivers.
Uncovering the True Cost of Healthcare: Incorporating Patient Costs into Research on Diagnostic Delays
This learning report summarizes Workshop #4 of the Uncovering the True Cost of Healthcare series, which examined how diagnostic delays create substantial and avoidable economic burdens for patients and caregivers.
Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving
The Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving Workshop #3 Learning Report summarizes a February 2025 multi-stakeholder convening hosted by IVI that examined the often-overlooked financial, career, and health impacts of unpaid family caregiving.
Uncovering the True Cost of Healthcare: Time is Money: Capturing Time Effects of Economic Impacts
This learning report summarizes Workshop #2 of the Uncovering the True Cost of Healthcare series, which focused on how time costs—the time patients and caregivers spend getting care, navigating the healthcare system, and self-advocating—create significant economic and quality-of-life impacts.
Uncovering the True Cost of Healthcare: Patient Journey Mapping to Inform Economic Impacts
This learning report summarizes the first workshop in the Uncovering the True Cost of Healthcare series, which explored how patient journey mapping can be used to identify and understand the full range of economic impacts experienced by patients and caregivers.
Uncovering the True Cost of Healthcare: Prioritizing Patient Perspectives
Join the Innovation and Value Initiative to prioritize the patient and caregiver perspective in assessing economic impacts beyond direct medical costs.
2023 PCORI Annual Meeting Poster “Economic Impacts Framework”
This poster summarizes a PCORI-funded IVI project to develop a patient-centered framework for capturing the full range of economic impacts of illness and healthcare on patients and caregivers.
Economic Impacts Project Overview
This overview introduces a new effort by the Innovation and Value Initiative and AcademyHealth to develop a framework for capturing the full range of economic impacts that people living with serious health conditions—and their caregivers—experience.
Economic Impacts Framework Executive Summary
The Executive Summary presents a concise overview of a new Economic Impacts Framework designed to help researchers, funders, and decision-makers systematically identify and incorporate the full range of economic impacts that healthcare encounters impose on patients and caregivers—