Our mission
Promoting Patient-
Centered Healthcare
The Center for Innovation & Value Research is an independent nonprofit research organization working to make sure that all patients have access to the right care at the right time.
Putting the Patient at the Center
Our Goal
To support the use of equitable, transparent, patient-centered evidence to drive better decisions in the development of therapies, research, and policy for better patient outcomes. Learn More »
Public Comment Period Now Open
Patient-Centered Value Research Checklist for Rare Disease
The Center for Innovation & Value Research is seeking public feedback on the Patient-Centered Value Research Checklist for Rare Diseases, a tool designed to guide researchers in conducting value research that is meaningful, inclusive, and grounded in patient experiences.
We welcome comments from a broad range of stakeholders, including:
- Researchers in HTA, HEOR, or CER
- HTA agencies and review bodies
- Rare disease pharmaceutical manufacturers
- Clinicians
- Patient advocacy organizations
- Individuals affected by rare diseases
How to Submit
We Encourage you to submit a letter (Word or PDF) on organizational letterhead or as an individual, responding to the following prompts:
- Is the checklist clear, comprehensive, and usable?
- Are there areas that need improvement or clarification?
- How might you use this tool in your work?
- Are there additional resources we should include?
Deadline for Submissions: August 18, 2025
Submit Feedback Here: public.comment@valueresearch.org
How We are Making a Difference for Patients
At the Center, we bring together key stakeholders, execute high-level research and analysis, and lead the conversation to ensure that HTA incorporates issues crucial to patient quality of life. Learn More »
HTA: challenges
and possibilities
Increasingly, the delivery of healthcare in the United States is driven by Health Technology Assessment (HTA). HTA is an analysis of the clinical and economic value of a particular health care intervention, using various factors such as cost, safety, and efficacy. It is used by employers, payers, manufacturers, and policymakers, among others, to help determine how patients are treated and at what cost. Learn More »
PERSPECTIVES
RESOURCES
A research-based plan for putting the principle of patient-centricity into practice