Resources
We are furthering the field’s understanding of how to improve health technology assessment.
Report
This report revealed the need to better understand the financial impacts, particularly job and education impacts, patients and caregivers experience.
…Resource
A brief overview of why this resource was developed, how it was created with multi-stakeholder input, and how it can
…Resource
A standalone RDPE checklist table with key questions and response options organized by phase. Designed for use in team meetings,
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A detailed guide and checklist for planning, carrying out, and documenting patient and caregiver engagement. Includes relevant examples, key definitions,
…Report
This report explores the economic impacts that patients and caregivers experience from the challenges of navigating chronic stress from a
…Poster
The poster, presented at the 2025 PCORI Annual Meeting, summarizes the development of a practical checklist to help researchers consistently
…Poster
This ISPOR poster describes the development of the Checklist for Patient Engagement in Rare Disease Value Research, created by IVI
…Poster
This poster presents the development of the Checklist for Patient Engagement in Rare Disease Value Research, created by IVI to
…Poster
This poster describes the creation of the Patient-Centered Value Research Guidance and Checklist for Rare Diseases, developed to help researchers
…Report
This learning report summarizes Workshop #4 of the Uncovering the True Cost of Healthcare series, which examined how diagnostic delays
…Report
The 2024 Annual Report highlights a year of strategic growth, expanded research, and a strengthened focus on patient-centered and equity-driven
…Report
The Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving Workshop #3 Learning Report summarizes a February 2025
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