IVI Responds to MFN Executive Order
Advancing patient-centered, evidence-based policy Alexandria, VA – May 13, 2025 – IVI released the following statement: IVI shares the goal of ensuring patients have affordable access to needed therapies. Controlling healthcare costs is essential to maintaining that access. However, the Most Favored Nation (MFN) pricing model is a blunt instrument that imports foreign price controls […]
Join IVI at ISPOR 2025
We are excited to present our research at ISPOR 2025 in Montreal, where our posters will contribute to the global dialogue on health economics and outcomes research (HEOR). In alignment with this year’s theme, “Collaborating to Improve Healthcare Decision Making for All: Expanding HEOR Horizons,” our work explores innovative methodologies and real-world data applications aimed […]
PRESS RELEASE: IVI Announces CEO Transition
IVI today announced that Dr. Jason Spangler has made the decision to step down as President and Chief Executive Officer, effective April 30, 2025.
Centering Caregivers in Rare Disease: Elevating Their Role in Patient-Centered Research and Advocacy
Authors: Dominque Seo, MPH, Gloria Rodriguez, MPH, Michelle Cheng, MHS While any single rare condition affects a relatively small population, collectively, rare diseases impact over 30 million Americans, which represents significant health impacts for individuals and families.1 At the heart of many patients’ health journeys are caregivers, who take on substantial responsibilities. Caregivers offer crucial […]
A Journey Through Pain and Mistrust: One Patient’s Fight for Dignity and Care
Elizabeth L. Cope, PhD, MPH, sheds light on the profound physical and emotional toll of a misdiagnosed and misunderstood health journey. Her story highlights the urgent need for a healthcare system that offers treatment and compassionate support. Through years of navigating stigma and mistrust, Elizabeth emerges as a fierce advocate for systemic change, fighting for a healthcare system that truly sees and serves those in need.
Understanding HTA: Why Health Technology Assessment Matters for Patients
By Xanthia Lam, MPH (May 2025), Patient Engagement Intern at IVI IVI (Center) is a non-profit research organization whose mission is to advance the science, use, and practice of Patient-Centered Health Technology Assessment to support decisions that make healthcare more meaningful and equitable. However, as Health Technology Assessment is a niche topic and field, it […]
My Caregiver and Patient Journey: A Story of Complexities and Financial Burdens
Beth Gore, Executive Director of the Oley Foundation, shares the profound challenges she faces as a caregiver for her six adopted children, each with unique medical needs. Living in Tampa with her family, Beth’s journey highlights the emotional and financial strain that comes with managing complex health issues, especially for her son Manny. Despite her […]
Unseen Burdens: Financial Equity and Patient Advocacy in Healthcare
Gwen Darien is a three-time cancer survivor whose journey reflects resilience and advocacy. After being diagnosed with non-Hodgkin lymphoma, breast cancer, and endometrial cancer, Gwen navigated significant physical, emotional, and economic challenges. Her experiences of lack of trust from healthcare providers and the high costs of care prompted a shift from the arts to health […]
Discussing Patient Engagement in Health Technology Assessment for Rare Diseases
Rare diseases present unique challenges for health technology assessment (HTA), a critical tool for evaluating the value of new treatments.
IVI’s CEO Co-Authors Commentary on AI in Healthcare
Artificial intelligence (AI) rapidly transforms health care, enhancing diagnostic accuracy, drug development, and personalized patient care. Dr. Jason Spangler and John Nosta discuss AI’s potential to improve clinical trial design, real-time monitoring, and predictive modeling, increasing efficiency and outcomes. By processing vast data sets, AI reveals new patterns and advances in health economics and outcomes […]