Understanding HTA: Why Health Technology Assessment Matters for Patients
By Xanthia Lam, MPH (May 2025), Patient Engagement Intern at the Center The Center for Innovation & Value Research (Center) is a non-profit research organization whose mission is to advance the science, use, and practice of Patient-Centered Health Technology Assessment to support decisions that make healthcare more meaningful and equitable. However, as Health Technology Assessment […]
My Caregiver and Patient Journey: A Story of Complexities and Financial Burdens
Beth Gore, Executive Director of the Oley Foundation, shares the profound challenges she faces as a caregiver for her six adopted children, each with unique medical needs. Living in Tampa with her family, Beth’s journey highlights the emotional and financial strain that comes with managing complex health issues, especially for her son Manny. Despite her […]
Unseen Burdens: Financial Equity and Patient Advocacy in Healthcare
Gwen Darien is a three-time cancer survivor whose journey reflects resilience and advocacy. After being diagnosed with non-Hodgkin lymphoma, breast cancer, and endometrial cancer, Gwen navigated significant physical, emotional, and economic challenges. Her experiences of lack of trust from healthcare providers and the high costs of care prompted a shift from the arts to health […]
The Center’s CEO Co-Authors Commentary on AI in Healthcare
Artificial intelligence (AI) rapidly transforms health care, enhancing diagnostic accuracy, drug development, and personalized patient care. Dr. Jason Spangler and John Nosta discuss AI’s potential to improve clinical trial design, real-time monitoring, and predictive modeling, increasing efficiency and outcomes. By processing vast data sets, AI reveals new patterns and advances in health economics and outcomes […]
PRESS RELEASE: The Center Announces Release of Patient-Centered Economic Impacts Learning Report
Alexandria, VA – October 17, 2024 – The Center for Innovation & Value Research (Center), a non-profit research organization committed to advancing the science, practice, and use of health technology assessment (HTA) in healthcare, has released a new learning report, “Uncovering the True Cost of Healthcare: Patient Journey Mapping to Inform Economic Impacts,” based on the […]
The Hidden Costs of Rare Disease: My Journey as a Caregiver and Advocate
Ushma Patel, Director of Patient Engagement at the Center for Innovation & Value Research, shares her personal experience navigating the economic and emotional impacts of her daughter’s rare disease. She highlights the often-overlooked financial burdens families face beyond direct medical costs and discusses how the Center’s Patient-Centered Economic Impacts Project seeks to address these challenges […]