PRESS RELEASE: IVI Announces Release of Patient-Centered Economic Impacts Learning Report
Alexandria, VA – October 17, 2024 – The IVI (Center), a non-profit research organization committed to advancing the science, practice, and use of health technology assessment (HTA) in healthcare, has released a new learning report, “Uncovering the True Cost of Healthcare: Patient Journey Mapping to Inform Economic Impacts,” based on the first workshop of a six-part […]
The Hidden Costs of Rare Disease: My Journey as a Caregiver and Advocate
Ushma Patel, Director of Patient Engagement at the IVI, shares her personal experience navigating the economic and emotional impacts of her daughter’s rare disease. She highlights the often-overlooked financial burdens families face beyond direct medical costs and discusses how IVI’s Patient-Centered Economic Impacts Project seeks to address these challenges in healthcare research and decision-making. During […]