IVI has released a new video introducing the Rare Disease Patient Engagement (RDPE) Checklist, a practical framework designed to help researchers embed patient and caregiver perspectives across all phases of rare disease value research and assessment.
The video highlights why meaningful engagement matters, how lived experience strengthens evidence generation, and practical steps research teams can take to improve patient-centered approaches in cost-effectiveness research, health technology assessment, and economic modeling.
Learn more about the RDPE Checklist here.
