Tiffany Westrich-Robertson
Diagnosed with non-radiographic Axial Spondyloarthropathy and various co-morbidities, Tiffany Westrich-Robertson has served as Chief Executive Officer since 2011. Under her leadership, she has spearheaded innovative, award winning projects, all based on patient-identified issues and patient-infused solutions. In 2015, she led the Ethics of Step Therapy Investigation and authored the associated white paper, which concluded preferred […]
Danny van Leeuwen
Richard Seiden, JD
Claire Sachs, MA
Beth Mathews-Bradshaw
Stephanie Marshall
Annie Kennedy
A veteran leader in the rare disease patient focused drug development movement, Annie joined the EveryLife Foundation in 2018, where she’s led the Cost of Delayed Diagnosis: A Health Economic Study, the National Economic Burden of Rare Disease study, the development of the ICD Code Roadmap, and the community-driven Guide to Patient Involvement in Rare […]
Anna Hyde, MA
Anna Hyde is the Vice President of Advocacy and Access at the Arthritis Foundation. She oversees both the federal and state legislative programs, in addition to grassroots engagement. Her focus is to raise the visibility of arthritis as a public health priority, build support for federal and state legislation that ensure access to affordable, high-quality […]
Kelly Barta
Adam Thompson
Adam Thompson is an independent consultant supporting health systems, communities, and patients to improve health outcomes. He holds a bachelor’s degree in Theology from Georgetown University and will graduate in December of 2022 with his Masters in Public Health from the Jefferson College of Population Health where he was named the 2022 Public Health Student […]