Resources

We are furthering the field’s understanding of how to improve health technology assessment.

Resource

A brief overview of why this resource was developed, how it was created with multi-stakeholder input, and how it can

Resource

A standalone RDPE checklist table with key questions and response options organized by phase. Designed for use in team meetings,

Resource

A detailed guide and checklist for planning, carrying out, and documenting patient and caregiver engagement. Includes relevant examples, key definitions,

Poster

The poster, presented at the 2025 PCORI Annual Meeting, summarizes the development of a practical checklist to help researchers consistently

Report

The Uncovering the True Cost of Healthcare: Quantifying the Cost of Stress for Patients and Caregivers Workshop #5 Learning Report

Poster

This ISPOR poster describes the development of the Checklist for Patient Engagement in Rare Disease Value Research, created by the

Poster

This poster presents the development of the Checklist for Patient Engagement in Rare Disease Value Research, created by the Center

Poster

This poster describes the creation of the Patient-Centered Value Research Guidance and Checklist for Rare Diseases, developed to help researchers

Report

This learning report summarizes Workshop #4 of the Uncovering the True Cost of Healthcare series, which examined how diagnostic delays

Report

The 2024 Annual Report highlights a year of strategic growth, expanded research, and a strengthened focus on patient-centered and equity-driven

Report

The Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving Workshop #3 Learning Report summarizes a February 2025

Report

This summary report captures the insights from the 6th Annual Methods Summit convened by the Center, which focused on advancing