The Center Calls for Stronger Patient Partnership and Real Consideration of Novel Value Elements in HEMA’s Draft Methods Report

In its public comments on the Health Economics Methods Advisory (HEMA) group’s draft report, “Defining Appropriate Benefits for Economic Evaluation  of Health Care Technologies,” the Center for Innovation & Value Research urged HEMA to strengthen its framework for defining benefits in economic evaluation. The Center called for patients and caregivers to be engaged as co-creators […]

Q&A with Center Health Equity Fellow

As her Health Equity Fellowship comes to a close, we’re proud to spotlight Dominique Seo, PhD candidate in Pharmaceutical Health Services Research at the University of Maryland, Baltimore. Over the past year, Dominique has brought deep expertise in pharmacoeconomics, with a focus on drug pricing, access, and health disparities, to the Center for Innovation & […]

Center Statement re: Trump’s Ultimatum on MFN

Statement from the Center for Innovation & Value Research on President Trump’s July 31 Ultimatum on Most Favored Nation The Center for Innovation & Value Research shares the public’s urgency in addressing the affordability of prescription drugs and healthcare in the United States. However, as momentum builds around aggressive policy proposals like the Most Favored […]

Redefining Value: Asia Williams on Building Trust and Advancing Through Community Engagement

Asia Williams, MPH, Program Officer at the National Academy of Medicine’s Leadership Consortium, leads the Trust & Engagement Action Collaborative, where she works to strengthen trust and elevate community voices in healthcare systems. With a background in public health, quality improvement, and patient engagement, she brings both personal and professional insight to the urgent need for meaningful community partnerships.

The Center Responds to MFN Executive Order

Advancing patient-centered, evidence-based policy Alexandria, VA – May 13, 2025 – The Center for Innovation & Value Research released the following statement: The Center for Innovation & Value Research shares the goal of ensuring patients have affordable access to needed therapies. Controlling healthcare costs is essential to maintaining that access. However, the Most Favored Nation […]

Join The Center at ISPOR 2025

We are excited to present our research at ISPOR 2025 in Montreal, where our posters will contribute to the global dialogue on health economics and outcomes research (HEOR). In alignment with this year’s theme, “Collaborating to Improve Healthcare Decision Making for All: Expanding HEOR Horizons,” our work explores innovative methodologies and real-world data applications aimed […]

Centering Caregivers in Rare Disease: Elevating Their Role in Patient-Centered Research and Advocacy

Authors: Dominque Seo, MPH, Gloria Rodriguez, MPH, Michelle Cheng, MHS While any single rare condition affects a relatively small population, collectively, rare diseases impact over 30 million Americans, which represents significant health impacts for individuals and families.1 At the heart of many patients’ health journeys are caregivers, who take on substantial responsibilities. Caregivers offer crucial […]

A Journey Through Pain and Mistrust: One Patient’s Fight for Dignity and Care

Elizabeth L. Cope, PhD, MPH, sheds light on the profound physical and emotional toll of a misdiagnosed and misunderstood health journey. Her story highlights the urgent need for a healthcare system that offers treatment and compassionate support. Through years of navigating stigma and mistrust, Elizabeth emerges as a fierce advocate for systemic change, fighting for a healthcare system that truly sees and serves those in need.