PRESS RELEASE: From Principle to Practice: New Checklist Supports Patient Engagement in Rare Disease Value Research

The Center for Innovation & Value Research (the Center), a non-profit research organization committed to advancing the science, practice, and use of health technology assessment (HTA) in healthcare, is proud to announce the launch of the Rare Disease Patient Engagement (RDPE) Guidance and Checklist, a practical, downloadable resource designed to support meaningful patient and caregiver […]

PRESS RELEASE: The Center Appoints Marc Boutin as President & Chief Executive Officer

The Center for Innovation & Value Research (Center) today announced the appointment of Marc Boutin as its new President and Chief Executive Officer, effective February 18, 2026. A family caregiver, patient advocate, executive, and patient himself, Boutin brings a lived perspective that informs his leadership at the Center. He also brings more than two decades […]

The Center Announces the Appointment of Five New Board Members

The Center for Innovation & Value Research (the Center), a non-profit research organization committed to advancing the science, practice, and use of value assessment in healthcare announced the addition of five new members to its 2026 Board of Directors: Elizabeth Cope, PhD, MPH (Chief Programs & Science Officer, AcademyHealth), Amy Duhig, PHD (Senior Director, New […]

The Center Calls for Stronger Patient Partnership and Real Consideration of Novel Value Elements in HEMA’s Draft Methods Report

In its public comments on the Health Economics Methods Advisory (HEMA) group’s draft report, “Defining Appropriate Benefits for Economic Evaluation  of Health Care Technologies,” the Center for Innovation & Value Research urged HEMA to strengthen its framework for defining benefits in economic evaluation. The Center called for patients and caregivers to be engaged as co-creators […]

Q&A with Center Health Equity Fellow

As her Health Equity Fellowship comes to a close, we’re proud to spotlight Dominique Seo, PhD candidate in Pharmaceutical Health Services Research at the University of Maryland, Baltimore. Over the past year, Dominique has brought deep expertise in pharmacoeconomics, with a focus on drug pricing, access, and health disparities, to the Center for Innovation & […]

Center Statement re: Trump’s Ultimatum on MFN

The Center for Innovation & Value Research shares the public’s urgency in addressing the affordability of prescription drugs and healthcare in the United States. However, as momentum builds around aggressive policy proposals like the Most Favored Nation (MFN) pricing model, we urge policymakers to pause and ask a critical question: What do these policies mean for […]

Redefining Value: Asia Williams on Building Trust and Advancing Through Community Engagement

Asia Williams, MPH, Program Officer at the National Academy of Medicine’s Leadership Consortium, leads the Trust & Engagement Action Collaborative, where she works to strengthen trust and elevate community voices in healthcare systems. With a background in public health, quality improvement, and patient engagement, she brings both personal and professional insight to the urgent need for meaningful community partnerships.

The Center Responds to MFN Executive Order

Advancing patient-centered, evidence-based policy Alexandria, VA – May 13, 2025 – The Center for Innovation & Value Research released the following statement: The Center for Innovation & Value Research shares the goal of ensuring patients have affordable access to needed therapies. Controlling healthcare costs is essential to maintaining that access. However, the Most Favored Nation […]