Uncovering the True Cost of Healthcare: Quantifying the Cost of Stress for Patients and Caregivers
The Uncovering the True Cost of Healthcare: Quantifying the Cost of Stress for Patients and Caregivers Workshop #5 Learning Report summarizes a September 2025 convening by the Center for Innovation & Value Research that examined chronic stress as a major, yet largely unmeasured, driver of both health outcomes and economic costs for patients and caregivers.
Uncovering the True Cost of Healthcare: Incorporating Patient Costs into Research on Diagnostic Delays
This learning report summarizes Workshop #4 of the Uncovering the True Cost of Healthcare series, which examined how diagnostic delays create substantial and avoidable economic burdens for patients and caregivers.
2024 Annual Report
The 2024 Annual Report highlights a year of strategic growth, expanded research, and a strengthened focus on patient-centered and equity-driven value research following the organization’s rebrand as the Center for Innovation & Value Research.
Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving
The Uncovering the True Cost of Healthcare: The Economic Realities of Caregiving Workshop #3 Learning Report summarizes a February 2025 multi-stakeholder convening hosted by the Center for Innovation & Value Research that examined the often-overlooked financial, career, and health impacts of unpaid family caregiving.
2025 Methods Summit Report
This summary report captures the insights from the 6th Annual Methods Summit convened by the Center, which focused on advancing patient-centered value research from definition through dissemination.
Uncovering the True Cost of Healthcare: Time is Money: Capturing Time Effects of Economic Impacts
This learning report summarizes Workshop #2 of the Uncovering the True Cost of Healthcare series, which focused on how time costs—the time patients and caregivers spend getting care, navigating the healthcare system, and self-advocating—create significant economic and quality-of-life impacts.
Uncovering the True Cost of Healthcare: Patient Journey Mapping to Inform Economic Impacts
This learning report summarizes the first workshop in the Uncovering the True Cost of Healthcare series, which explored how patient journey mapping can be used to identify and understand the full range of economic impacts experienced by patients and caregivers.
Fulfilling the Promise of Equity in Value-Based Care: A Focus on Communications and Use in Health Technology Assessment
This report concludes the Health Equity Initiative by focusing on how communications and use of health technology assessment (HTA) must change to advance equitable, value-based care.
2024 Methods Summit Summary
This summary report captures insights from the 5th Annual IVI Methods Summit, which focused on the future of patient-centered health technology assessment (HTA).
Valuing Rare Disease Treatments in Healthcare: Real Experience, Real Impact
This report, developed by the Innovation and Value Initiative and the EveryLife Foundation for Rare Diseases, outlines how comparative effectiveness research, patient-centered outcomes research, and value assessment must evolve to better reflect what matters to people living with rare diseases and their caregivers.