2026 Methods Summit
Valuing Innovation: Measuring What Matters
Moving Beyond Cost-Effectiveness to the Full Spectrum of Patient-Centered Value
March 25, 2026 - Washington, DC
The 2026 7th Annual Methods Summit will convene leaders in value research, policy, and patient advocacy to examine how value assessment can better reflect the full spectrum of what matters to patients. Grounded in the Center’s principles of methodological rigor, transparency, equity, and patient-centeredness, the Summit will move beyond traditional cost-effectiveness approaches to explore more inclusive and relevant methods for defining and measuring value.
Through focused sessions and collaborative discussion, participants will assess progress and gaps in incorporating patient-centered value elements and explore what is ready, emerging, and next in the field, generating insights to inform a forthcoming methods brief and contributing to the national conversation on value-based decision-making.
Agenda
Wednesday, March 25, 2026
9:00 AM || Registration
10:00 AM || Welcome and Fireside Chat
The Summit begins with a welcome, followed by a fireside chat with keynote speaker, Laura Pizzi. Discussion will center around the evolution of value definitions and the potential for new methods beyond traditional cost-effectiveness in value research.
Marc Boutin (Center for Innovation & Value Research, President & CEO)
Laura Pizzi, PharmD, MPH (ISPOR, Chief Science Officer)
10:40 AM || Session 1: Impacts on Families
This session explores how caregiver impacts, family well-being, and household productivity influence the true value of treatment. Speakers will examine research progress, data limitations, and the importance of integrating family and caregiver impacts on value-based decision-making.
Darcel Jackson, CPXP, LSSGB (Children’s National Hospital, Manager of Patient and Family Centered Care)
Tara Lavelle, PhD (Tufts University School of Medicine, Assistant Professor of Medicine)
Tabassum Majid, PhD, MA (PCORI, Senior Program Officer)
Jason Resendez (National Alliance for Caregiving, President & CEO)
11:30 AM || Break
11:40 AM || Session 2: Severity of Disease
This Session will examine how and whether severity of disease can be more systematically embedded in value assessment. Speakers will discuss new methods in this area that may help to align valuation with societal preferences and advance more equitable decision-making.
Sarah Bermingham, MSc, BSc (Takeda, Global Health Economics Lead)
Suzanne M. Collins (Individual Caregiver Representative)
William Padula, PhD, MSc (University of Southern California, Associate Professor of Pharmaceutical & Health Economics)
Claire Telford, PhD, MSc (Pfizer, HTA, Value & Evidence Methods Innovation Lead)
12:30 PM || Lunch
1:30 PM || Session 3: Innovation and Technology Transfer
This session focuses on “scientific spillover,” highlighting the ripple effects of research, innovation, and technological advancement that extend beyond individual treatments. Panelists will explore how breakthroughs such as cell and gene therapy and personalized medicine challenge existing value assessment methods and underscore the importance of capturing their wider societal benefits.
Lisa Feng, DrPH, MPH (Bristol Myers Squibb, Senior Director, US Policy Research & Economics)
Mariah J. Scott, MS, MPH (Rutgers University, Researcher, Advocate, and Epidemiologist)
Priscilla VanderVeer, MA (No Patient Left Behind, Executive Director)
Craig Wakeford, MA (Alexion Pharmaceutical)
2:20 PM || Closing Keynote: Moving Patient-Centered Value into Real-World Practice
The Summit will conclude with a keynote from Dr. Nakela Cook who will reflect on how PCORI’s research portfolio connects to the challenges and opportunities raised throughout the day. Marc Boutin will join Dr. Cook for an interactive conversation about where the field must advance next and how researchers, patients, and decision-makers can work together to ensure patient-centered value research drives real-world impact.
Nakela Cook, MD, MPH (PCORI, Executive Director)
3:30 PM || Reception
Informal networking and refreshments to close the day.
DETAILS
When:
Wednesday, March 25, 2026
9:00 AM – 5:00 PM EDT
Where:
USC Capital Campus
1771 N Street NW
Washington, DC 20036
(In-Person and Live Stream)
Sarah Bermingham
Takeda
Sarah Bermingham
Takeda
Marc Boutin
Center for Innovation & Value Research
Marc Boutin
Center for Innovation & Value Research
Suzanne Collins
Individual Caregiver Representative
Suzanne Collins
Individual Caregiver Representative
Nakela Cook
PCORI
Nakela Cook
PCORI
Lisa Feng
Bristol Myers Squibb
Lisa Feng
Bristol Myers Squibb
Darcel Jackson
Children's National Hospital
Darcel Jackson
Children's National Hospital
Tara Lavelle
Tufts University
Tara Lavelle
Tufts University
Tabassum Majid
PCORI
Tabassum Majid
PCORI
William Padula
University of Southern California
William Padula
University of Southern California
Laura Pizzi
ISPOR
Laura Pizzi
ISPOR
Jason Resendez
National Alliance for Caregiving
Jason Resendez
National Alliance for Caregiving
Mariah Scott
Rutgers University
Mariah Scott
Rutgers University
Claire Telford
Pfizer
Claire Telford
Pfizer
Priscilla VanderVeer
No Patient Left Behind
Priscilla VanderVeer
No Patient Left Behind
Craig Wakeford
Alexion, AstraZeneca Rare Disease
Craig Wakeford
Alexion, AstraZeneca Rare Disease