Blueprint for Patient-Centered Value Research
A Foundational Resource to Make Research More Equitable, Transparent, and Truly Patient-Centered
After intensive collaboration and community input, the Center’s Blueprint for Patient-Centered Value Research is now live. This resource provides practical strategies, tools, and frameworks for integrating patient engagement throughout the research lifecycle, from study design to dissemination. Whether you’re a researcher, patient advocate, policy leader, or health system stakeholder, the Blueprint provides a shared starting point to reimagine how we define and deliver value in healthcare.
Together, let’s shift from research about patients to research with patients.
How to Use the Blueprint
For Patients and Patient Advocates
- Ensure your voice is integrated in research that impacts your community
- Use the Blueprint to advocate for more inclusive and transparent research practices
- Collaborate with researchers and health systems to prioritize lived experience
For Researchers and Academics
- Apply equity-informed strategies to design, conduct, and communicate your work
- Use the Blueprint to structure patient engagement across every phase of your research
- Strengthen funding proposals and ethics submissions with a clear patient-centered approach
For Policymakers and Regulatory Bodies
- Align policy and funding decisions with community-identified value
- Use the Blueprint to evaluate research proposals for equity and patient relevance
- Support systems that reward transparency, collaboration, and inclusive evidence generation
For Payers and Health System Decision-Makers
- Embed patient-defined value into coverage and access decisions
- Use the Blueprint as a reference to guide assessment models that reflect real-world outcomes
- Build trust with patients and communities through more inclusive decision-making frameworks
We welcome your input and feedback on the Blueprint. E-mail your comments to Rick Chapman, PhD at rick.chapman@valueresearch.org.
Join us in shaping a resource that will advance patient-centered research and improve outcomes for all.
Explore the Blueprint
The INITIATION phase focuses working with patients and caregivers to build trust and understand their perspectives, needs, and priorities, in order to set a clear direction for healthcare research.
The PLANNING phase involves developing a comprehensive scope that outlines the objectives, methodologies, and boundaries of healthcare research, ensuring alignment with patient and caregiver priorities.
During the EXECUTION phase, data is systematically collected and analyzed using methods that incorporate and emphasize patient and caregiver lived experiences to ensure the findings are relevant and actionable for improving care.
The MONITORING phase emphasizes continuous improvement by regularly reviewing and refining healthcare research based on patient and caregiver feedback to enhance outcomes and satisfaction over time.
DISSEMINATION involves effectively communicating the results of healthcare research in accessible formats to all audiences, including patients and caregivers, and involving patients and caregivers to disseminate findings through multiple channels and formats.
The ASSESSMENT phase includes reviewing ongoing research to assess quality of patient engagement, soliciting feedback from patients and caregivers, and involving them in the process to address gaps and formulate future research questions.