THE VALUE BRIEF
A Center for Innovation & Value Research Podcast
Welcome to The Value Brief, the official podcast of the Center for Innovation & Value Research. We dive into the pressing challenges and breakthrough opportunities in healthcare, exploring topics that shape patient-centered care, innovation, and value-based decision-making.
Join our hosts as they engage with leading experts, patients, caregivers, and researchers to uncover actionable insights that drive better healthcare outcomes.
Episode 1: Breaking Barriers (Part 1)
Transforming Rare Disease Patient Engagement
This episode, part 1 of a 2-part series, explores the critical topic of rare disease patient engagement with expert guests Adrian Kielhorn (AstraZeneca Rare Disease) and Charlene Son Rigby (Global Genes). They share their insights on the challenges faced by rare disease communities, inspiring success stories highlighting the power of patient engagement, and the role of technology, policy, and industry collaboration in shaping a better future for patients.
Rick Chapman, PhD
Chief Science Officer
Center for Innovation & Value ResearchHost
Charlene Son Rigby, MBA
Chief Executive Officer
Global GenesGuest Speaker
Adrian Kielhorn
Senior Director, Global HEOR Neurology
Alexion, AstraZeneca Rare Disease Guest Speaker