This poster summarizes a PCORI-funded IVI project to develop a patient-centered framework for capturing the full range of economic impacts of illness and healthcare on patients and caregivers. Using an environmental scan and iterative multi-stakeholder engagement, the project produced a framework identifying 68 specific economic impacts across six domains—direct medical costs, non-clinical healthcare costs, social impacts, ability to work, education and job impacts, and caregiver and family impacts. The poster highlights guiding principles that emphasizes partnering with people with lived experience, using mixed methods, embedding health equity throughout research, and applying the framework to improve comparative effectiveness research and health technology assessment so they better reflect real-world patient and caregiver burdens.
