On April 19, 2022, the Innovation and Value Initiative responded to the Agency for Healthcare Research and Quality (AHRQ)’s request for public comments on its proposed strategic framework for a patient-centered outcomes research trust fund. IVI commended AHRQ for its commitment to patient-centered outcomes research and for its focus on issues of equity and behavioral health. We had three primary recommendations:
- Use AHRQ’s unique position as a trainer of healthcare researchers and disseminator of new evidence to augment the work of PCORI and other HHS agencies.
- Establish minimum inclusion standards for people with lived experience, especially people from under-represented communities, in research studies.
- Support training programs that foster and help both researchers and patients to collaborate and co-design research studies.
Read IVI’s full comments and suggested references here.
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The Innovation and Value Initiative is a 501(c)(3) nonprofit research organization committed to advancing the science, practice, and use of value assessment in healthcare through collaboration among thought leaders in academia, patient organizations, payers, life science firms, providers, delivery systems and other organizations.
If you enjoy reading our blog posts and interested in learning more about IVI or becoming a member, please contact Erica Malik at erica.malik@thevalueinitiative.org. You can also find information on our membership page here.