Advancing Patient-Centered Outcomes Research for Rare Diseases: A Mixed-Methods Approach
Engaging Patients with Rare Disease in Identifying Meaningful Approaches to integrate Patient-Centered Outcomes inComparative Effectiveness Research and Value Assessment
Bridging the Gap, Empowering Patients: A Collaborative Approach to Rare Disease Research
“Bridging the Gap, Empowering Patients: A Collaborative Approach to Rare Disease Research” highlights the significance of adopting a collaborative, patient-centered approach in rare disease research. Led by the Innovation and Value Initiative and Alexion, AstraZeneca Rare Disease, the conversation underscores the importance of transforming the future of rare disease care through collective efforts and patient-centric […]