Marc Yale was diagnosed in 2007 with Cicatricial Pemphigoid, a rare autoimmune blistering skin disease and this inspired him to help others with rare diseases. He has been volunteering and working with the International Pemphigus and Pemphigoid Foundation for 17 years with people to improve their quality of life and encouraging them to become self-advocates. Marc has served as an advisor and board director with numerous organizations to ensure a lasting impact on the lives of people living with a rare disease around the globe.