Kevin grew up on his family’s dairy farm in Leavenworth, Kansas. He and his two brothers all were diagnosed with sickle cell disease. Kevin graduated from the University of Kansas and worked in pharmaceutical sales and management for 23 years before taking an early retirement due to health complications from his sickle cell. Since retirement, he earned his master’s degree from Walden University and a Community Health Worker certification from SCDAA. Kevin is now a patient advocate and is currently the President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest in Kansas City, KS. He is involved with advocacy through the Rare Disease Legislative Advocates, is Chairman of University Health’s Patient Family Advisory Council and has worked on state and national committees.
