Resources
We are furthering the field’s understanding of the improvement of health technology assessment
Publications, Briefs, & Commentaries
Centering Caregivers in Rare Disease: Elevating Their Role in Patient-Centered Research and Advocacy
Authors: Dominque Seo, MPH, Gloria Rodriguez, MPH, Michelle Cheng, MHSWhile any single rare condition affects a relatively small population, collectively, rare diseases impact over 30 million American…
Economic Impacts Project
Rare Disease Project
Engaging Patients with Rare Disease in Identifying Meaningful Approaches to integrate Patient-Centered Outcomes inComparative Effectiveness Research and Value AssessmentEngaging Patients with Rare Disease in Identifying Meaningful Approaches to integrate Patient-Centered Outcomes inComparative Effectiveness Research and Value Assessment
Each year, we invite our member organizations to help set our strategy and research agenda.
This event convenes health policy leaders, healthcare executives, patient leaders, and researchers to address critical challenges in patient-centered value assessment.
Join the Center for open conversations about best practices with researchers, patient organizations, policymakers, and those who pay for care.
Centering Caregivers in Rare Disease: Elevating Their Role in Patient-Centered Research and Advocacy
Authors: Dominque Seo, MPH, Gloria Rodriguez, MPH, Michelle Cheng, MHSWhile any …
Elizabeth L. Cope, PhD, MPH, sheds light on the profound physical and emotional …
Alexandria, VA – January 15, 2025 – The Center for Innovation & Value R…