Dr. Eleanor M. Perfetto has worked in government, industry, consulting, academic, and non-profit environments. Most recently, she was with the leading U.S. nonprofit organization focused on patient issues as the National Health Council’s Executive Vice President for Strategic Initiatives. Since 2013, Dr. Perfetto has been a Professor at the University of Maryland School of Pharmacy. Her teaching and research focus on patient and family engagement, particularly in patient centered-outcomes research; patient-focused medical-product development; and clinical outcome assessment. Dr. Perfetto lectures and consults on gathering and using patient experience data to inform clinical trial endpoint selection, clinical outcome assessment selection/development, and value/health technology assessments. Prior, Dr. Perfetto was with Pfizer for almost eight years, most recently as Senior Director, Federal Government Relations.
Recently, she served as the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) 2024 Patient Summit co-chair and in 2016 served as co-chair for the ISPOR Annual Meeting. In the past, she has served as: a CMS MedCAC member; co-chair of the National Quality Forum’s Alzheimer’s Disease and Related Dementias Project and on their Patient-Reported Outcomes Expert Panel; the Pharmacy Quality Alliance and Drug Information Association board chair; and a past member of the Center for Medical Technology Policy and Health Industry Council boards. She holds BS and MS degrees in pharmacy from the University of Rhode Island, and a PhD from the University of North Carolina at Chapel Hill School of Public Health, concentrating in health policy and epidemiology.
As caregiver for her late spouse who suffered from football-related chronic traumatic encephalopathy, Eleanor has become a recognized advocate for patients with head-trauma-related dementias and their families. Today, she serves on the Brain Injury Association of America’s Board as board secretary and governance committee chair. She also is a past chair of the Concession Legacy Foundation board.
