Interactive Workshop Series
The Patient-Centered Economic Impacts (PCEI) interactive workshop series is open to those interested in making health research more patient-centered, particularly patients, caregivers, researchers, payers, industry experts, research sponsors, and other stakeholders. In 2024-2025, IVI will host a series of free 2-hour workshops held via Zoom. Each workshop will focus on a specific topic featuring expert faculty.
2024 Workshop Series
Workshop #1: Journey Mapping Patient-Centered Economic Impacts for Research
The first workshop in our series focused on the use of patient journey maps as a tool to integrate Patient-Centered Economic Impacts (PCEI) into research. The workshop was facilitated by Center staff with presentations from Elisabeth M. Oehrlein, PhD, MS, Founder and CEO of Applied Patient Experience, LLC and Jae Samuel, patient advocate.
Over 50 attendees representing researchers, patients, patient advocates, caregivers, funders, and industry, gathered to:
- Identify respectful empowering ways to ask about and include economic impacts when mapping patient journeys.
- Explore elements of the PCEI framework most important to include in patient journey maps.
- Discover how patient journey maps can inform research design, interpretation, and limitations.
When:
Thursday, July 18, 2024
1:00 PM – 3:00 PM EDT
Facilitated by IVI staff with presentations from Elisabeth M. Oehrlein, PhD, MS, Founder and CEO of Applied Patient Experience, LLC and Jae Samuel, patient advocate.
Please contact ushma.patel@thevalueinitiative.org if you have any questions.
Workshop #2: Time is Money: Capturing Time Effects of Economic Impacts
The second workshop focused on the often-overlooked time costs experienced by patients and caregivers, including delayed treatment, lost income, and missed educational opportunities. By focusing on the entire patient journey, researchers and funders can improve trust and partnerships with patient communities and gain a deeper understanding of healthcare’s true costs. Participants learned how a more holistic approach—one that considers the entire patient journey—can build stronger partnerships, enhance trust, and reshape future funding priorities. The findings from this discussion will guide more inclusive and impactful research practices, ensuring a fuller understanding of healthcare’s true economic impact.
Key questions addressed in this workshop include:
- What economic impacts are most felt as time costs by patients and caregivers?
- What aspects of time are most important to measure?
- How do these time costs differ across various ages, demographics, and socioeconomic backgrounds?
When:
Thursday, November 14, 2024
1:00 PM – 3:00 PM EDT
Facilitated by the Center staff with presentations by Tina Aswani-Omprakash, MPH, President and Co-Founder, South Asian IBD Alliance (SAIA), Beth Gore, CEO of the Oley Foundation, and Casey Quinn.
Please contact ushma.patel@valueresearch.org if you have any questions.